About the HOPES project

This resource is based on research undertaken at the University of York. It collates the experiences of specialist support workers (& their managers), homecare workers, service users and family carers; providing recommendations on the key stepping stones needed to successfully engage older people and deliver care.

This resource will be further developed over the next few months, with the opportunity to attend interactive sessions being added at a later date. If you are interested in being involved, please contact: Louise.newbould@york.ac.uk

The HOPES team and partners

The HOPES learning resource was co-produced in a research programme convened by the University of York.

In developing the resource, the researchers spoke to support workers in different areas of England who help older people with dementia and mental health needs.  They analysed how they go about supporting people who do not engage well with social care, despite clearly needing help.  Our experts-by-experience also interviewed families about their own perspectives.  We also reviewed international evidence on good practice.

The resource was supported by the following individuals and groups: 

Research team:

Wendy Mitchell and David Niman (researchers with lived experience of dementia and care provision);
Louise Newbould, Mark Wilberforce, Sue Tucker and Kritika Samsi (academic researchers)
Gill Gregory (practice expert)
Gerard Crofton-Martin (education expert)

We would like to express our sadness that Maria-Helena Niman, a public contributor to our study, passed away in 2020 having struggled with Alzheimer’s for some time. Her bright and energetic contributions to our early work was a reminder of what this research was all for. Wendy Mitchell’s blog on one of our early meetings shows the importance of Maria-Helena’s involvement in the HOPES study.” https://whichmeamitoday.wordpress.com/2019/10/02/why-acceptance-of-social-care-need-isnt-always-a-given/

Key partners:

Chantelle Cowan, Nicola Burton and Sue Doorbar (Humber Teaching NHS Foundation Trust); Jane Salt and Jane Porter (Adult Social Care, Stockport Metropolitan Borough Council); Ahmed and Yusuf Lambat  (LMCP Care Link); Christopher Clarke, Debbie Hodgson & Katrina Cope (Tees Esk & Wear Valleys NHS Foundation Trust ); Sally Ferris, Claire Marrett and Joanne Brizland-Cullen (Together Dementia); Alexandra Burton (University College London); Dr Dave Jolley (University of Manchester).

We would also like to thank all those who took part in the project and who gave their time to help us develop this learning resource.

This study was funded by the National Institute for Health Research Research for Patient Benefit programme (NIHR RfPB), with follow on work funded by the NIHR School for Social Care Research (NIHR SSCR). The views expressed are those of the authors and not necessarily those of the NIHR or the Department of Health and Social Care.

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